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    Student-Parents' experiences of academic and non-academic support in UK Higher Education

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    Following publication, this report was cited by the Office for Students as an evidence base informing their decision to include student-parents in the Equality of Opportunity Risk Register (see here: https://www.officeforstudents.org.uk/advice-and-guidance/promoting-equal-opportunities/equality-of-opportunity-risk-register/student-characteristics/students-with-parental-responsibility/)This report analyses the findings of a nationwide study of students who are also parents (student-parents). Carried out between May and August 2023, the study builds on previous small-scale research projects into the needs of student-parents1 and was undertaken in the context of: • the introduction of a new UCAS question inviting student-parents to self-identify when applying to university; and • the introduction of the Office for Students’ (OfS) Equality of Opportunity Register (EORR). This report explores participants’ experiences of pastoral and academic support at university. It exposes systemic failures in such support for student-parents across the sector which pose a significant risk to their retention, progression and success. Parental responsibility is not currently identified by OfS as a standalone characteristic likely to place students ‘at risk’ at university. However, the findings of this study reveal that student-parents are in fact vulnerable to five of the six ‘on course’ risks identified in the EORR. This three-part clickable report provides a compelling evidence base to support the inclusion of parental responsibility in the EORR list of student characteristics

    Anxiety and depression among adults with haemophilia A: Patient and physician reported symptoms from the real‐world European CHESS II study

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    From Crossref journal articles via Jisc Publications RouterHistory: received 2023-11-01, accepted 2024-03-04, epub 2024-03-20, issued 2024-03-20, published 2024-03-20Article version: VoRPublication status: PublishedFunder: Sanofi; FundRef: https://doi.org/10.13039/10.13039/100004339Funder: BioMarin Pharmaceutical; FundRef: https://doi.org/10.13039/10.13039/100008484AbstractIntroductionThe physical pain and disability affecting many people with haemophilia A (PwHA) are known detractors from psychological wellbeing. While psychosocial support is considered a core tenet of the haemophilia comprehensive care structure, the extent to which mental health challenges are detected and monitored by the individuals treating haematologist remains relatively unexplored.AimTo describe prevalence of anxiety and depression in a real‐world cohort of adult PwHA and evaluate the congruence in reporting of anxiety or depression (A/D) between PwHA and their treating physicians.MethodsData for PwHA without inhibitors was drawn from the European ‘Cost of Haemophilia: A Socioeconomic Survey II’ (CHESS II) study. Haematologist‐indicated comorbidities of anxiety and depression were unified into a single A/D indicator. The EQ‐5D‐5L health status measure was used to characterise self‐reported A/D, with individuals stratified into two non‐mutually exclusive subgroups based on level of A/D reported (Subgroup A: ‘some’ or above; Subgroup B: ‘moderate’ or above).ResultOf 381 PwHA with evaluable EQ‐5D‐5L responses, 54% (n = 206) self‐reported at least some A/D (Subgroup A) and 17% (n = 66) reported at least moderate A/D (Subgroup B). Patient‐physician congruence in A/D reporting was 53% and 76% for Subgroups A and B, respectively. Descriptive analysis suggested that individuals with physician‐ and/or self‐reported A/D experienced worse clinical outcomes (bleeding events, joint disease, chronic pain).ConclusionWhile adverse clinical outcomes appear to correlate with A/D, self‐reports of moderate–severe symptoms occasionally lacked formal recognition from treating physicians. Cross‐disciplinary surveillance of mental health issues could improve both psychological and clinical outcomes among PwHA

    Economic and Humanistic Burden of Moderate and Severe Hemophilia A and B in Spain: Real-World Evidence Insights from the CHESS II Study.

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    From PubMed via Jisc Publications RouterHistory: received 2023-10-23, accepted 2024-01-16Publication status: epublishHemophilia is a congenital disorder characterized by deficiency or absence of clotting factor VIII in hemophilia A (HA) or clotting factor IX in hemophilia B (HB), resulting in frequent, repeated, and prolonged spontaneous or traumatic bleeding into joints or soft tissue. Severity is classified by the patient's baseline level of clotting factor activity as mild (>5%-40%), moderate (1%-5%), or severe (<1%). In Spain, there is limited information on the societal economic burden of disease. To estimate the economic and humanistic burden of disease in adult patients with non-inhibitor moderate and severe HA and HB in Spain. Spanish data from the CHESS II study (2018-2020) on patients' clinical characteristics, health-related quality of life (HRQoL) and hemophilia-related healthcare resource utilization were analyzed. Economic burden was determined by estimating condition-related annual per-patient direct (medical and nonmedical) and indirect costs, stratified according to hemophilia type and severity and presented as 2022 Euros. HRQoL was assessed via the EQ-5D-5L. Of 341 patients in the Spanish CHESS II cohort, 288 patients met the inclusion criteria: 181 had HA (37% [n = 66] moderate and 63% [n=115] severe) and 107 had HB (26% [n = 28] moderate and 74% [n = 79] severe). Mean annual direct cost was higher in HB than in HA, and higher in severe than in moderate patients, resulting in an annual cost/patient of €17 251 (moderate HA), €17 796 (moderate HB), €116 767 (severe HA) and €206 996 (severe HB). The main direct cost component in all groups except moderate HA was factor replacement therapy. Mean per-patient indirect cost was €4089 (moderate HA), €797 (moderate HB), €8633 (severe HA) and €8049 (severe HB). Finally, the mean total cost (direct and indirect) for moderate and severe patients were €91 017 (HA) and €163 924 (HB). EQ-5D-5L [SD] scores were lower in patients with severe HA (0.77 [0.18]) and severe HB (0.70 [0.22]) compared with patients with moderate HA (0.81 [0.15]) and moderate HB (0.86 [0.17]). Independently of the type of hemophilia, greater condition severity was associated with increased costs and a decrease in HRQoL

    Designing defect enriched Bi2Ti2O7/C3N4 micro-photo-electrolysis reactor for photo-Fenton like catalytic reaction

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    Among various advanced oxidation processes, photo-Fenton like catalysis, which couples solar energy with Fenton-like catalysis to generate highly reactive species for wastewater decontamination, has attracted broad interests. However, photo-Fenton catalysts usually suffer from poor pH adaptability, metal leaching and photogenerated charge recombination. Herein, a novel defect-enriched Bi2Ti2O7/C3N4 (BTO/CN) heterojunction is prepared via ball milling-thermal treatment method and used as a durable photo-Fenton like catalyst to degrade phenol in water. The BTO/CN heterojunction shows an excellent optical absorption capacity, and a superior e--h+ separation efficiency. With the addition of PMS, a micro-photo-electrolysis reactor can be formed in the BTO/CN, rendering it high photocatalytic activity, excellent tolerance to environmental condition and exceptional stability. The BTO/CN micro-photo-electrolysis reactor exhibits superior performance in phenol removal and excellent tolerance towards salt ions. Non-radical pathway and radical dotOH oxidation are demonstrated to contribute to phenol degradation in the BTO/CN heterojunction photo-Fenton-like system. The PMS can simultaneously boost the interfacial charge transmission from BTO to CN forming internal BTO photoanode and CN photocathode, leading to sustainable photocatalytic performance without secondary pollution. This work successfully demonstrates a feasible strategy to develop solar energy assisted Fenton-like catalyst for efficient water decontamination, which holds a great promise towards practical photo-Fenton water decontamination

    Developing a supportive community of practice: a doctoral case study

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    This paper employs a qualitative case study to suggest how the research journey of doctoral students can be improved in educational institutions by encouraging the formation of small and informal Communities of Practice (CoP). It examines themes emerging from the feelings and opinions of four part-time professional doctorate students about their study experience and participation in their emergent CoP. A peer group developed where the students share their experience, expertise, insight, and knowledge in a caring and supportive, but informal, forum. CoP could become an effective tool to aid retention, identity development and wellbeing of postgraduate level students, factors which have been previously identified as key areas of risk. An autoethnographic approach was used to review the feelings, perceptions, and opinions of the four case study group members about their experiences of the informal CoP to date. Thematic analysis of transcripts and WhatsApp communications was used to reveal the perceived common benefits and gains from participation in the informal CoP such as joy, safe spaces, and identity development, aligning members experiences to a CoP lifecycle. The study found small group formation at doctoral programme induction, and encouragement for students to organise their own regular study days using of social channels, may impact overall success. Application and adaptation of this doctoral CoP model could form the basis for future research and a model for academic institutions to suggest to new and existing students Keywords/key phrases: community of practice, lifecycle, professional doctoral students, support, identity.N/

    Popular Music Autobiographies: Rereading Musicians and their Audiences

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    This chapter considers female fans’ book-length autobiographies, life stories written that recount years spent following stars, particularly from the worlds of 1960s, 1970s and 1980s rock and pop. Mass culture criticism, parasocial interaction, totemism, and participatory culture are widely understood as distinct paradigms through which academics can analyze media fandom. In parallel, I suggest they can also be seen as discursive resources that pop fans exploit in the development of autobiographic accounts. To explain this idea, I compare four case study books: My Ticket to Ride by Janice Mitchell (2021), Ah-Ha Moments by Larissa Bendell (2016), Bye, Bye Baby by Caroline Sullivan (2000), My Men, Mick and Me by Andee Baker (2020). My argument is that in such autobiographic accounts some female fans, particularly, play upon aspects of these familiar frames of thinking, not only to talk about their experiences of fandom, but also to frame their encounters inspirationally, and think about gender relations in ways that are potentially empowering.N/

    A 12 week double-blind randomised controlled trial investigating the effect of dietary supplementation with 5000 IU/day (125 µg/day) vitamin D in adults with asthma, led to an improvement in the lung function parameter - FEV1:FVC ratio.

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    From PubMed via Jisc Publications RouterPublication status: aheadofprintVitamin D deficiency has previously been linked to higher rates of exacerbation and reduced lung function in asthmatics. Previous randomised controlled trials (RCT) investigating the effect of vitamin D supplementation have mainly focussed on children with asthma. Trials involving adults have typically used bolus dosing regimes and the main outcomes have been patient focussed without investigating underlying inflammation. The present study aimed to conduct a 12-week placebo-controlled RCT administering a daily 5000 IU (125 µg) vitamin D3 supplement to adults with mild to moderate asthma. A total of 32 participants were randomised to receive either the 5000 IU vitamin D3 supplement or an identical matching placebo. The primary outcome of the study was lung function measured by ratio of FEV :FVC (effect size 2.5) with secondary outcomes including asthma symptoms and inflammatory biomarkers. There was a small but statistically significant higher increase in the mean (± SD) ratio of FEV : FVC from baseline to post-intervention in the vitamin D group (+ 0.05 ± 0.06) compared to the placebo group (+ 0.006 ± 0.04, p = 0.04). There was no effect of the intervention on asthma control test scores, or the inflammatory biomarkers measured. There was a moderate, significant association between baseline plasma 25(OH)D concentration and baseline plasma IL-10 (r = 0.527, p = 0.005) and TNF-α (r = -0.498. p = 0.008) concentrations. A daily vitamin D3 supplement led to slightly improved lung function in adult asthmatics and may be a useful adjunct to existing asthma control strategies, particularly for individuals with suboptimal vitamin D status

    Prospect and Refuge in Villette’s Forbidden Garden

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    During the Victorian period, the expansion of the domestic sphere into the garden afforded women greater agency within their own physical and psychological landscapes. The Pensionnat in Charlotte Brontë’s Villette (1853) provides Lucy Snowe, the protagonist, with access to a forbidden avenue within the school garden, initially providing her with shelter and solitude. Taking an interdisciplinary approach, this article reads the novel through the lens of the ‘prospect–refuge’ theory developed by the aesthetic geographer Jay Appleton, which considers people’s emotional and psychological responses to their environment. It explores the symbolic uses of the garden space to convey the emotional landscape of characters as well as examining how Brontë positions her protagonist in the garden to allow Lucy freedoms not easily afforded within formal indoor settings.Unfunde

    Pandora's Box 2019

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    A selection of the year's best creative writing by the students and staff at the University of Chester.Unfunde

    Now [flash fiction]

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